Take part in an online video course for young patient advocates!

We start our Academy by meeting each qualified participant for an one-hour session. It allows us to get to know each person better, increase their commitment, and build understanding between us. During the call, we learn more about the situation of patients with a given disease in a specific country and the challenges faced by the patient organization.

After completing individual meetings with participants, we start a 21-day program containing various activities. This is a solution that we have developed together with participants over the last six years and which brings the most benefits, while enabling participation in a way that is easy to reconcile with their daily duties and professional work.

The first days of the course are dedicated to introducing the topic and getting to know each other better on the exclusive discussion group.

Then, for 2 weeks, every work day we provide video lectures in English, each approximately 20 minutes long (10 total) covering the most important issues related to the topic of a given edition of the course, supported by daily discussions on Facebook group and team-work during live sessions. We also take care of English subtitles so that each participant can understand the content, even if he or she is not fluent in English. To make PatientAdvocacy.Academy even more accessible to participants from different parts of the world, from 2024 our videos are also available in other languages such as Russian or Ukrainian. We will prepare them using the latest solutions using AI technology. Each video also consist of many additional screens, charts and infographics to make learning easier and more enjoyable.

Additional educational materials are prepared for each video lesson, which allows participants to consolidate their knowledge and immediately translate it into practical solutions for their patient organizations.

In previous editions, thanks to online video conferences, we created a significant sense of unity across the participants, who learned from each other, motivated themselves and provided others with valuable feedback. In this year edition, we also plan to conduct 2 online videoconferences – coaching circles – during which participants will exchange views and experiences on the proposed topics in order to find solutions to their own obstacles.

All the videos are available for participants on a dedicated e-platform for 6 months after the course.

It breaks down geographical barriers – you can learn with us regardless of your location – whether we're separated by hundreds of kilometers, geographical barriers won't hold you back.

It offers flexibility in terms of when and where you can learn – you have access to training materials at a time that suits you and fitting your learning around work, family, and other responsibilities.

It is more cost-effective than traditional stationary courses – you save on accommodation and transport costs.

It allows you to learn at your own pace – you adjust your learning pace depending on whether you need more time to understand difficult concepts or want to progress faster in material you find easier.

Business psychologist with vast amount of experience in designing and developing online courses. Successful TEDx speaker (over 400k views), author of many scientific publications on international conferences and articles popularizing psychological knowledge.

Co-author of a handbook for PID patients – “Fullness of life”. Using professional skills and experience for the past few years engaged in a voluntary work with people with rare diseases.

In the Healthcare Education Institute she is responsible for the scientific part of our job, focusing herself on coordinating studies and reports.

From 2010 to 2018, served as leader of the Polish Association for Patients with Primary Immunodeficiencies 'Immunoprotect’ and was a member of the executive board of the international umbrella association, the International Patient Organization for Primary Immunodeficiencies (IPOPI).

For his successful patient advocacy, Goretzki was given the Luciano Vassali Award in 2014, the University of Silesia Rector’s Award in 2020, RARE Champion of Hope in 2022 and the EURORDIS Black Pearl Award in 2023.

Professional lawyer, advisor, and speaker. Fascinated with opportunities given by new technologies in the field of education.

A lawyer by profession, in recent years she has worked in criminal justice body, where she also dealt with medical malpractice cases.

She gained experience in working with groups of patients primarily as a project manager in the Polish Association for Patients with Primary Immunodeficiencies 'Immunoprotect' in 2014-2017.

At the Healthcare Education Institute, she is responsible for coordinating ongoing projects and cooperation with patient organizations, mainly in matters related to reimbursement, access to treatment and the fight for patients' rights.