Take part in an online video course for young patient advocates!

Recent years, months or even weeks have brought patient advocates – especially those operating in the area of plasma-derived products – many challenges.

First, we experienced the COVID-19 pandemic which strongly affected the healthcare systems in different countries, access to treatment and appropriate diagnostics, as well as the approach to patients with rare diseases.

Also, drops in plasma donation caused by a pandemic resulted in shortages of drugs for patients who are fully dependent on them.

In some countries there are already temporary drug availability problems, in others the pandemic has become an excuse to cut back on spending on rare disease patients.

Moreover, in February, Ukraine was attacked by Russia and the war began - the first such large armed conflict since the Second World War. The war had an obvious impact on Ukrainian rare disease patients, but also on healthcare systems across Europe.

It is high time to take a look at these challenges and start discussing them in order to think about what actions we may take in the field of patient advocacy and patient education.

Therefore, during PatientAdvocacy.Academy 2022, we want to take up all relevant topics from the PAG perspective in the context of Global Challenges, such as an access to treatment, vaccinations, online education and plasma awareness. We want to initiate the exchange of experiences and develop solutions that will help to effectively meet the needs of patients in the near future.

Again we decided to design a 21-day programme containing various activities. First days would be dedicated to introducing the topic and getting to know each other better on Slack group.

Then we provide 10 video lectures covering most important topics, supported by everyday discussions on Slack, and team work during live sessions.

In the first 5 videos, we will focus on the challenges faced by patient advocates, and in the next ones - on possible solutions.

There would be 3 online video conferences – coaching circles – where participants would exchange their view and experiences on the proposed topics in order to find solutions of their own obstacles.

All the videos will be available for you on a dedicated e-platform for 6 months after the course.

In years 2010-2018 leader of Polish Association for Patients with Primary Immunodeficiencies 'Immunoprotect', former member of IPOPI executive board. For his successful patient advocacy Adrian has been given Luciano Vassali Award in 2014, University of Silesia Rector’s Award in 2020 and was shortlisted for the EURORDIS Patient Advocacy Award in 2021. Professional trainer, advisor and speaker. Fascinated with opportunities given by the new technologies in the field of education. He introduces video tutorials, online courses, webinars and video streaming to the areas of patient engagement and education.

Business psychologist with vast amount of experience in designing and developing online courses. Successful TEDx speaker (over 350k views), author of many scientific publications on international conferences and articles popularizing psychological knowledge. Co-author of a handbook for PID patients – “Fullness of life”. Using professional skills and experience for the past few years engaged in a voluntary work with people with rare diseases. In the Healthcare Education Institute she is responsible for the scientific part of our job, focusing herself on coordinating studies and reports.

Day 1-4

Day 5-9

Day 6

Day 12

Day 12-16

Day 15

Day 16

Day 21